Saturday, 23 February 2013

Update 25 - Survey Results Part 12

This is the last part of the original survey, based on the 300 from August 2012:

I asked about the ability of people to return to work:

 To my untrained eye this looked a bit wrong, so separating GBS & CIDP you get:

Now this really did not make sense.  If GBS is an acute condition and 80% of people with it make a good recovery, then I would expect 80% of those to be back at work (so I expected a 20% - No, 20% - Limited and 60% - Fully), whereas for GBS we have a 50/50 split.  So, whilst I am happy with the CIDP figures, the GBS ones seem to be far too high, is it because:

  • I asked the question in the wrong way? "Are you able to return to work? (Yes - Fully, Yes - Limited or No)"
  • Are people being mis-diagnosed with GBS when they have CIDP (because GBS is more known about?)
  • Does it relate to previous slides about fatigue and this causes them not to be able to return to work
  • Are the previous thoughts on this for GBS wrong
  • Should other factors be considered:
    • like people are older and recover less fast
    • were much fitter before so will struggle afterwards
    • generally in the before and after they can do less
  • Is GBS not an acute condition!

I do not know the answer. From my position, with CIDP, I have returned to work fully (with modifications to my car and job), but I suffer massively from fatigue and can (and have) over do it and cause issues, but as I need to earn money, I have little choice.

Looking at how healthy people now are, we get:

What we can clearly see is that GBS sufferers are much more healthy than those with CIDP, as stated before this is entirely expected. Once again though, I would have presumed the numbers for GBS would be substantially higher?

The final chart shows this direct comparison off better:

So people with GBS are healthier than people with CIDP, but the difference from the people who filled in my survey is not that distinct.

These are my last charts.  On my next submission I will try and draw some conclusions, then I have to re-incorporate the 500 results (ish) I now have and work out how to display the results in an easier form for you to digest (and one that won't take me 6 months to publish!).

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