Sunday, 9 September 2012

Update 15 - Survey Results Part 2

I think I made a big mistake right at the start of my survey.  I asked for the age of the people filling the survey in (which is shown in Part 1).  What I should have asked is what was your age when you first contracted the condition (GBS/CIDP)?

So I have done some extrapolation of the date entered, against the age entered, the date the survey was answered and the date when the condition was contracted/diagnosed and I get:

Now if you compare this with the earlier results this changes the age of people contracting GBS/CIDP significantly, so the majority of people were under 45 and very few 65 or over.

Moving onto how the condition was contracted I get some very different results between GBS & CIDP:

What this shows is that significantly more people with GBS thought their condition was due to a virus or other illness and in my view that is because the symptoms occurred much more closely with when GBS was contracted, as CIDP takes a lot longer.  What is also worth noting is that a vaccination is actually deliberately giving you a virus (albeit a "dead" one) so this could be classed as the same.  I know how I contracted CIDP, via a vaccine, but that was easy as it was shortly afterwards that I was laid low by a virus and the rest is below....

The number of doctors/consultants seen was the next question asked.  The results are:

Though a significant number of people did see more than 6 doctors the average number of consultants seen is 3.65 (see below):

What is surprising is that there is minimal difference between any of the categories and I would have expected the consultants seen to be much higher for CIDP than GBS, given the time differential for diagnosis.

The last set of results, are in my view the most interesting so far.  This is based around the question of how fit the person was before contracting GBS/CIDP:

So according to these figures nearly 90% of people were active!  OK so there are bound to be differences in how people marked themselves, but even so this is astounding as I expected this to be more or less even split between the four categories, if not swayed slightly towards passive. I regard myself as fairly passive, though was much more active in earlier years.

Now looking at it for each illness, it seems even more remarkable as clearly CIDP sufferers marked themselves as even more active than GBS, yet the number with GBS who overall were passive is considerably less.

What does this tell us?  One possible interpretation is: If you are more active, then you go to different places and require vaccinations........ Another is that the fitter you are the more healthy you should be, therefore the more active your immune system is....... Or people filled it in wrong?

That is enough to ponder for this part.  I will publish the next set in a couple of weeks and I hope you find them interesting.

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